I have never shared before, but I feel that the more people that know the better. Myself and a close friend are going in for our scans in one week at FCHC in Vancouver BC. First I must thank the clinic for accommodating the two of us as we come from the same town so the clinic set up our appointments on the same day.They say I have R&R type I think I have secondary MS I think I know more than they do about it as I only see the Nero 1 time a year to refill the scrip that costs 1800 dollars a month. I wonder what kind of kickbacks they are getting for this.
My friend is much worse, he has had MS since he was 19 he is now 50 and unable to care for himself in any way, but he lives alone and keeps his spirits up. Now, he was a guinea pig for many years, but now that he has chosen to go off all drugs the clinic never calls him. He went ten years without a phone call to come in for a check up on the progression of his MS. Makes you wonder who these doctors are really working for? I am very sceptical and my friend is very patient so we make a pretty good pair.
The real reason why I am going to try this blog is because I think I am going to be going on a Journey and I would like to share with people who understand and care. First I am terrified I know my veins in my arms are small and I do not even like getting my blood taken so I am very scared. My friend on the other hand is excited that he may get to use his hands again as he is an artist, he keeps telling me that I need to go or I will end up like him one day. So he is the push that I need to get over my fear, I keep thinking how important it is for him to get the procedure done.
I will try to keep this blog updated every couple or few days. Also I realize I am not the best writer in the world but thank you for reading anyway. This is difficult for me as I can only feel one finger on my left hand, so I don't type well.