Thursday, November 11, 2010

Puzzled

I was told a couple of weeks ago to phone this lady in my home town because she was going to Mexico for angioplasty and she knows everything about it. Even though I have been researching this since November of last year I thought maybe she knew something I didn't. I didn't call her till I had another friend show up at house and told me she knew someone I should talk to that this person was going to Mexico for angioplasty. I thought well maybe, but then she told me the lady's name and guess what it was the same lady but I still was in no hurry to call her. Finally I thought I should give her a call and see what my friends were talking about. So happens when I called her she was getting ready to head out the door so I gave her my phone number wished her best results in Mexico and asked her to call me when she gets back. The conversation was short and I was surprised at how easy it was.

Then two days later she called back she sounds like a nice enough person but then when it was to late to get out of the conversation, short of being rude, she started talking very loud almost yelling at me. Now I have heard about hearing problems with MS but never noticed it like this. I tried to talk to her but every time I would start talking she would loudly interupt me. When I finally got off the phone I felt like I had just had confrontation with her even though we hadn't had one because everything I said to her she told me I was wrong. I told her that there was one approved study in Canada where the government was going to consider the results, Dr. Haake blood quantification study, she told me I was wrong and that they are going to do the procedure at UBC and Dr. Haake she hadn't even heard of so asked her if she knew who Dr. Godley was and guess what she never heard of him either. I asked her if it was a neuro doing it or IR and Vascular doctors doing it she then told me she was in the study and it is a genetic specialist doing it. Now I do not have a clue what this woman is talking about but I know for sure that a genetic specialist can not and will not be presenting his finding to the government committee that has halted this procedure in Canada. She was reffered by her Neuroligist to see this man we the same Neuro and she knows better than to ask me to go see the guy. I could see a pharmacy company trying to get in on the genetics of why this happens to people but it is simple the only doctors that can make a difference are Vascular surgeons and Inteventional Radioligists. So much for talking to someone else with MS that knows everything. It made me realize why I stay at home and research things online with like minded people that I choose to be friends with.
It turns out she really knows very little, has cog fog quite bad and didn't even book her own procedure someone else did it for her. But she seems to know it all, I hope she doesn't give false hope to too many people. I am still researching as I have a hard time keeping up with it all.

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